Thursday, August 19, 2010
Family Cost Participation and Redesign...again
The family letter:
DEPARTMENT OF ECONOMIC SECURITY
DIVISON OF DEVELOPMENTAL DISABILITIES (DDD) AND
ARIZONA EARLY INTERVENTION PROGRAM (AzEIP) PARTNER TO EXPAND
THE EARLY INTERVENTION TEAM-BASED MODEL ACROSS ARIZONA
This notice is to inform you about an upcoming change in how the Division of Developmental
Disabilities (DDD) provides early intervention services to children birth to three with developmental
delays and developmental disabilities. The changes emphasize working together as a team, increasing
access to services and making birth to three services more coordinated for families.
DDD, under the umbrella of the Arizona Early Intervention Program (AzEIP), provides early
intervention services to eligible children, birth to three, and their families. In the early intervention
program, families and professionals work together to support and enhance children’s growth,
development, and learning in their natural environment. In addition to the increased coordination and
access to services, this change will also enhance the Department of Economic Security’s ability to
provide timely services as required by Part C of the Individuals with Disabilities Education Act (IDEA.)
For the past few years, the Department of Economic Security’s early intervention programs, DES/AzEIP
and DDD, have been working to ensure that Arizona’s children and families receive needed services and
supports in ways that are most beneficial to them. At community forums held statewide, families,
providers and other interested stakeholders shared their thoughts about the early intervention program.
A plan for “redesign” was drafted and families and professionals were invited to review and comment.
Based on their input, AzEIP implemented a new “team-based service” model in 2008 for those families
served by contractors of DES/AzEIP (not eligible for DDD).
In early 2011, DDD will begin implementing early intervention services with this team-based
model. The goal is to improve the way in which families and children receive supports and
significantly expand access to early intervention services.
Early intervention services provided by a team means that each team will have the capacity to provide
occupational, physical and speech therapies, developmental special instruction, social work and
psychology services. A family and their “team” will decide which provider will be the family’s “team
lead” to coordinate with other team members. By having each professional working as part of the same
team, the family will have the benefit of their combined expertise. Support coordination services will
continue to be provided by DDD.
When the new service model is implemented it may mean some changes in who provides services.
There will be opportunities to ask questions and learn about the changes through both a comment period
on the Qualified Vendor application and informational sessions to provide more specifics on how the
team based model will operate and guidance on transition to the new model.
DDD looks forward to continuing its commitment to working with you, your family, and your child.
Friday, February 26, 2010
Family Cost Participation- Delayed!
Friday, February 12, 2010
Thursday, January 21, 2010
Family Cost Participation
"Effective March 1, 2010 the Division will implement a family cost participation program for early intervention services. The Department of Economic Security Arizona Early Intervention Program (AzEIP) is authorized by Federal law (20 U.S.C. §1432(4) (B); 34 C.F.R. §§303.520 and -.521) and Arizona law (ARS 36-562(G)) to require parents/responsible parties to pay for a percentage of their child’s services. Children who are Arizona Long-Term Care System (ALTCS) eligible are excluded from this program. The amount a family may have to pay will be based on adjusted gross income over 200% of the Federal poverty level, family size and the costs paid by the State for the services their child receives.
If you have questions, please contact (602) 364-1379 or email your question and phone number to DDDHotline@azdes.gov. "
Hopefully this isn't new news to anyone- most of the families that I know of have already received their letters. I keep hearing that support coordinators should be getting in touch with families in order to determine what their payment would be each month and adjust the IFSP accordingly if families will be unable to pay for services. I did see that families could apply for a hardship waiver of fees but I don't know how that works or what the chances of getting a waiver would be.
E-mail, write, and call your legislators.
Saturday, December 19, 2009
Possible News Story
"I just got word that 12 News is looking to do a story on Early Intervention Services if the funding cuts go through the legislature. They are looking for families willing to interview with their children on camera. If anyone is interested please contact Melissa, her email is
mblasius@12news.com "
Please contact Michelle at Fighting for My Son's Services in AZ with questions.
Friday, November 20, 2009
Please, please e-mail or call your legislators!
Here's the link to contact info for each representative. Please contact at least ONE.
http://www.azleg.gov/MemberRoster.asp
Tuesday, November 3, 2009
Update from Raising Special Kids
Raising Special Kids
ACTION ALERT
November 3, 2009
What's next?
This week, 2,000 parents of children with disabilities and special health conditions are receiving letters from APIPA. These families are being informed that their eligibility for CRS services has been terminated. This is not like the previous letter, moving families into 100% self-pay status, this means their eligibility to use CRS services has ended.
As the budget crisis deepens, the ability of the state to provide for its most vulnerable children is being tested as never before.
We all have a stake in seeing that our elected representatives understand the critical nature of these services for children with disabilities and special health needs. Without access to health care services and the ability to manage serious and chronic medical conditions, more children suffer needlessly, become more severely affected by their disability, and have a less favorable prognosis. What is the legislature doing to see that the state meets its basic obligations to children for health, education, and essential services? And what program is on the next list of cuts?
Find your legislators and their contact info at http://www.azleg.gov/
Please refer to our website www.raisingspecialkids.org or contact us at 602-242-4366, Toll Free 1-800-237-3007 or info@raisingspecialkids.org
For additional advocacy tips and support visit http://www.pafcoalition.org/
Tuesday, October 27, 2009
AZ budget info....again
https://egov.azdes.gov/cms400min/uploadedFiles/Office_of_Communications/fy2010_budget_review_15_percent_reduction.pdf
I know its long, but it isn't terribly dense. Read or skim it all, even if you have to do it in multiple sittings. Keep in mind that this isn't set in stone, but it is a bit worrisome. Page 35 discusses possible restriction/elimination of Early Intervention, and specifies that this would cost the state its funding from IDEA part C. Here's a little takeaway quote for you:
"However, Arizona already falls into the “narrow” band of early intervention eligibility nationally and it is uncertain whether the federal government would approve a stricter standard. If federal approval could not be acquired, the state would no longer receive IDEA Part C funds and would not have the obligation to provide early intervention services through state funds. Children eligible for ATLCS would be unaffected, but the other 9,100 children (on an annual basis) may lose their services. Even for those who continue to receive services though their health plans, services may be difficult to access, time-limited, and uncoordinated across disciplines. The savings estimate for this option assumes the loss of the federal Part C grant, though the Department obviously prefers a solution that maintains the grant while reducing the pressure on state funds."
That section goes on to describe the benefits of early intervention, and the impact that would come from eliminating it.
Read, call, write, post
Sunday, July 26, 2009
Good info :)
Here's how it works. The moment you discover your child is missing, alert an employee, giving information like age, name, height, hair style, clothing, and most importantly, the shoes your child is wearing. Kidnappers are less likely to be able to change your child's shoes to disguise your child. Once that employee pages a Code Adam, all employees drop what they're doing to search for the missing child. All external doors are guarded, and every child that matches the description is approached to determine if the child is yours. If your child is found, accompanied by another adult, reasonable efforts to delay their departure are taken without putting the child, staff, or visitors at risk while law enforcement is notified of the situation including a detailed description of the adult.
Not all stores support Code Adam. Upon entering a store, check the front door/window for a blue sticker that says Code Adam (a picture of the sticker can be found at the above linked article).
Tuesday, July 14, 2009
Autistic meltdown vs. temper tantrum
Temper tantrum
"A temper tantrum is very straightforward. A child does not get his or her own way and, as grandma would say, "pitches a fit." This is not to discount the temper tantrum. They are not fun for anyone.
Tantrums have several qualities that distinguish them from meltdowns.
* A child having a tantrum will look occasionally to see if his or her behavior is getting a reaction.
* A child in the middle of a tantrum will take precautions to be sure they won't get hurt.
* A child who throws a tantrum will attempt to use the social situation to his or her benefit.
* When the situation is resolved, the tantrum will end as suddenly as it began.
* A tantrum will give you the feeling that the child is in control, although he would like you to think he is not.
* A tantrum is thrown to achieve a specific goal and once the goal is met, things return to normal."
Autistic meltdown
"* During a meltdown, a child with autism does not look, nor care, if those around him are reacting to his behavior.
* A child in the middle of a meltdown does not consider her own safety.
* A child in a meltdown has no interest or involvement in the social situation.
* Meltdowns will usually continue as though they are moving under their own power and wind down slowly.
* A meltdown conveys the feeling that no one is in control.
* A meltdown usually occurs because a specific want has not been permitted and after that point has been reached, nothing can satisfy the child until the situation is over."
My only disagreement with this is that I have definitely known kids with autism who would throw true temper tantrums. The intention was very definitely to manipulate. I've had other parents of kids with autism tell me the same thing- many of these kids are "capable" of using tantrums (that appear similar to meltdowns) to try and get their way.
Monday, June 29, 2009
Steven's Law
1. Ask the Company/Human Resources Dept. (HR) for whom you work (where you receive your health benefits/insurance) if the plan your family has is a “Self Insured Plan.” If they tell you “Yes” – you are not eligible for benefits under Steven’s Law. If they tell you “No” go to step # 2.
2. If you do not know or are unsure, ask the HR Department if the company has 50 or more employees. If they tell you “No” than you are not eligible for benefits under Steven’s Law. If they tell you “Yes” go to step #3.
3. Ask the HR Department where/in which state your Insurance Plan is “underwritten.” If your plan has been underwritten in any state other than Arizona you may not be eligible for Steven’s Law.
4. Call your insurance company and ask for “Member Benefits.” Ask if they (Customer Service) are familiar with Arizona’s Steven’s Law/Autism Coverage.If they tell you “No” ask to speak to a Supervisor and ask the Supervisor the same questions.
5. If they tell you “Yes” ask them if your family (your child) is eligible for the benefits under your plan.
6. If they tell you “No” ask them why/what the reason is, and then tell them you want the reason you do not have coverage sent to you in writing.
7. If they tell you “Yes” request a list of “Network or Contracted Providers” or “Preferred Providers” for your area. This will give you all of the agencies and/or individuals who are contracted with your insurance company to provide services outlined by Steven’s Law.
8. Because some Companies have elected to offer this coverage when they are not required to, call your insurance company and ask even if you think you are NOT eligible. If they tell you that you ARE eligible, request it in writing before you make any appointments etc.
From here.
Monday, June 22, 2009
You're Not Listening rally June 23rd
CALLING ALL CONCERNED
The “You’re Not Listening!” event takes place TUESDAY, June 23. This event will have a different feel/appeal than what has been done in the past.
There has been marching, rallying, chanting, singing, moments of silence, emailing, phone calling, meeting with your legislators, articles in the news, letters to the editor, interest stories on the news/tv and the list goes on… These efforts HAVE made a difference. A judgment was awarded resulting in 69 days without budget cuts and restoration of non-title 19 funded services – so far; restoration of Early Intervention Services and a renewed sense of urgency and attention to the disabled population. But we cannot stop there. We need assurances for our children well beyond the age of 3. Our State government is NOT LISTENING to our cries for justice for ALL disabled citizens.
Therefore think visual, symbolic, strong messages that convey images, feelings and thoughts, to other participants. Our focused target group is the Governor, Legislators, the press/media and passersby.
Ideas…Suggestions…
- Earmuffs representing you’re not listening/hearing us
- Trace two hands together and “cut” off one finger – representing a loss of 10%
**Place your name, address, phone number on the back for delivery to Governor/Legislators**
- Group of 100 people, 90 in white shirts, 10 in black.
- Candlelight Vigil – 100 candles, 10 not lit
We need large banners like bed sheets, bolts of cloth with statements representing what “You’re Not Listening” means to you and the individuals you serve. Use your body as a billboard – wearing white t-shirts with your message of “You’re Not Listening”. Or depict thoughts and feelings about being developmentally disabled – that it is a challenge in itself - having to justify that disability - having to justify necessary life supporting services - having to settle for anything less than whole is an injustice – merciless - acts of violence (another train of thought).
Timelines…..this is an estimate, details will be sent Monday 6/22/09
11:30a – Governors tower
12:00p – Press Release House Lawn
12:30p – House of Representatives
1pm – Senate
Prayer/Candlelight Vigil – 7pm-9pm
As Tom stated in his last email, “I am begging each of you to put aside any differences and work together to fight the extremely destructive appropriations that will hurt people with disabilities, their families and providers of service for years to come, if they are approved as currently recommended. We would love to see you next Tuesday and we hope you will support our efforts to get our Governor and Legislature to listen to our plea.”
Please forward this notice, as well as future notices, to anyone you think might be potentially interested.
Saturday, June 13, 2009
AHCCCS Eligibility Policy Manual
This includes the AHCCCS questionnaires and scoring instructions that are used to qualify children.
Wednesday, June 10, 2009
Right of the Month- June
I've heard from many families in service that between intakes, evaluations, doctors, and therapists, they feel like they recite their family and child's history...several times over. As a therapist, I can say that the more I know about your family and child, the better I can assist you. However, this has to be balanced against the family's need for (and right to) privacy. Ultimately, the line is drawn differently for each family, and with each professional, and I would love to hear about how any readers have decided to draw those lines.
For other discussions of rights, click the right of the month label.
Wednesday, June 3, 2009
Supreme court to hear budget cut challenge
By Howard Fischer
Capitol Media Services
The Arizona Supreme Court turned aside two requests Monday by state agencies to block the Legislature from cutting their funds but agreed to hear arguments on a third.
Without comment, the justices rejected efforts by organizations that provide care to the developmentally disabled to force the Department of Economic Security to restore funds for services to the developmentally disabled.
In a separate order Monday, the justices refused to consider claims by the Industrial Commission of Arizona that the Legislature illegally took some funds from the agency to balance the state budget.
The rulings are most immediate a victory for the state which, for the time being, doesn't have to spend any more money.
But the high court did agree to hear arguments at the end of this month on a claim by First Things First that it was illegal for lawmakers to take more than $7 million from the account of that program approved two years ago by voters.
All three lawsuits are a direct outgrowth of a move by lawmakers in January to deal with a $1.6 billion deficit.
Legislators sought to balance the budget in part by "sweeping'' money from special accounts held by various state agencies. All totaled, lawmakers took more than $500 million.
That included $7 million in interest accumulated by First Things First, a program approved by voters in 2006 to add an 80-cents-a-pack tax on cigarettes to fund programs for early childhood development. By law, the tax proceeds are off limits. But legislators insisted they could take the interest that was earned off the money.
The high court agreed Monday to consider arguments that the raid was illegal.
The justices, however, refused to consider a similar claim by the Industrial Commission that taking $4.7 million from its special accounts was illegal.
In a petition to the Supreme Court, attorneys for the commission said the funds constitutionally can be used only to benefit injured workers, their employers and the companies that provide workers' compensation insurance, "not the general public.'' They also said the sweep amounted to "an unconstitutional taking of private property ... without just compensation.''
But attorneys for the state said there was nothing special about the commission's funds, allowing lawmakers to tap the cash when needed.
In Monday's action, the Supreme Court simply refused to hear the arguments.
That, however, does not end the matter. The commission is still free to file a regular lawsuit in Maricopa County Superior Court and try to make its case there.
The third lawsuit stems from the order by lawmakers in January that DES reduce its spending by about $150 million. That agency, in turn, cut payments to individuals and others that provide services to the developmentally disabled by 10 percent.
DES also eliminated services for people who are moderately developmentally disabled who, with support, can work in the private sector. Also cut was funding for early intervention services for 2,000 children, from birth through age 3, who are at risk for becoming developmentally disabled.
A trial judge blocked the move in March, ruling DES had acted illegally, blocking the cuts.
But the Arizona Court of Appeals last month said the evidence showed the agency had done nothing illegal and allowed DES to proceed with the reductions. Monday's Supreme Court decision upholds that ruling.
From here.
Saturday, May 23, 2009
Free Anat Baniel clinic
Millennium Martial Arts School
91st Avenue & Peoria Avenue
(Next to Peter Piper Pizza)
9976 N. 91st Ave, B-110
Peoria, AZ 85345
What is the Anat Baniel Method?
The Anat Baniel Method expands on the work of Dr. Moshe Feldenkrais. It is a non-medical, learning based approach that uses gentle touch and movement to enable the child with special needs or a learning disability to improve physically, mentally and emotionally. It asks children to move only in ways which are within their true capabilities, creating a feeling of safety, encouraging a willingness to expand into new abilities. Practitioners certified in this method provide learning experiences that help children develop beyond their limitations. Infants’ and children’s progress often surpass medical expectations.
To reserve your free lesson call:
Michelle M. Turner 602.909.2565
Reserve a space for your child to receive a free introductory Anat Baniel Method lesson. Find out what a difference this new work can make in a special needs child’s life.
You can find out more about the Anat Baniel Method here. I will say that from what I've seen of this method, this is a great opportunity.
Right of the Month- May
The agency I work for, and most other agencies that I know of, keep a file for each child/family in service. Our files include things like current IFSP's, evaluations, therapy reports, things signed at intake, and logs from each visit. Since the files are about your child, as the parent you have the right to ask to see the file. We prefer to make an appointment so that someone can sit down and go through the file with you, but there isn't anything in the file that you wouldn't be allowed to see. I believe the procedures with the DDD might be a bit different and a bit more formalized, but I searched briefly on their site and didn't find any info. If you are requesting a copy of your child's DDD file for some reason, calling your support coordinator would be a good first step.
Wednesday, May 13, 2009
Down Syndrome conference at Phoenix Children's
Down syndrome: Recent Advances in Medical Treatment
Saturday, May 30, 8:00am-12:00pm
Panel of physicians specializing in Down syndrome including our own Medical Director, Dr Jason Turner
Down syndrome: Recent Advances in Medical Treatment
Audience – families and caretakers of children with Down syndrome
Saturday, May 30th
Cost – Free
Location –Cohen Conference Room
Agenda
7:30 – 8:00 Registration
8:00 – 8:05 Welcome & introductions Lynda Christel
8:05 – 8:25 A parent's perspective Dr. Jason Turner
8:25 - 8:45 Primary Care Teens Dr Tressia Shaw
8:45 - 9:15 Developmental Pediatrics Dr Elaine Ellis
9:15 – 9:45 GI, Feeding Dr. Dana Ursea
9:45 – 10:15 Endocrinology Dr. Don Wilson
10:15 – 10:30 Panel Q & A PCH
10:30 – 10:45 Break
10:45 – 11:15 Orthopedics, Special Olympics Dr. Lee Segal
11:15 – 11:45 Cardiac Dr. Jeff Pearl
11:45 – 12:15 Pediatric Radiology Dr.Towbin
12:15 Panel Q & A PCH
Free parking
Refreshments
Register online at http://ga1.org/ phoenixchildrens /events/down_ syndrome_ event/details. tcl
Contact Karen Pennington, Physician Relations at 602-546-3300 kpennington@ phoenixchildrens .com
Saturday, May 9, 2009
ACDL Hearing Update
http://acdlaw. ning.com/ forum/topic/ show?id=2968555% 3ATopic%3A1101
Wednesday, May 6, 2009
Public Hearing on Friday
If you can't attend, please send an e-mail!
PUBLIC NOTICE
APPLICATION FOR FUNDS UNDER
PART C OF THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT
FEDERAL FISCAL YEAR 2009 (July 1, 2009-June 30, 2010)
The Department of Economic Security (DES), as the Lead Agency for Part C of the Individuals with Disabilities Education Act (IDEA), is seeking public comment on Arizona’s draft 2009 Application for Federal Funds. The Arizona Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will accept input on the application beginning April 3, 2009 until June 3, 2009. The application is for Arizona’s early intervention program, a statewide program for infants and toddlers, birth to three years of age, with disabilities and their families. The participating State agencies include: the Arizona Department of Economic Security (DES), Arizona State Schools for the Deaf and the Blind (ASDB), Arizona Department of Health Services (DHS), Arizona Health Care Cost Containment System (AHCCCS), and the Arizona Department of Education (ADE).
Persons submitting comments on specific items in the application should indicate support, opposition, suggested changes, additions, or deletions pertaining to the specific item. Input received by DES/AzEIP by4:00 p.m. on June 3, 2009 will be considered. The draft application will be available atwww.azdes.gov/ AzEIP. If you are unable to access the application electronically, please contact DES/AzEIP at (602) 532-9960; toll-free at (888) 439-5609, or by email at AllAzeip2@azdes. gov.
The Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will conduct public comment hearings on the draft 2009 Application for Federal Funds, at the following locations and dates:
| 5/8/09- Phoenix- 2:30-3:30pm AZ DOT – HRDC Grand Canyon Rooms 1&2 1130 N. 22nd Avenue Phoenix, AZ 85009 5/26/09-Flagstaff 2pm-4pm East Flagstaff Community Library Meeting Room 3000 N. Fourth Street, Suite 5 Flagstaff, AZ 86004 | ||
| 5/27/09- Phoenix 4pm-6pm Yucca Library Meeting Room 5648 N. 15th Avenue Phoenix, AZ 85015 5/28/09- Tucson 4pm-6pm Himmel Park Branch Library Meeting Room 1035 N. Treat Avenue Tucson, AZ 85716 | ||
Oral and written comments will be accepted at the public hearing. Written comments may also be mailed to DES/AzEIP, 3839 N. 3rd Street, Suite 304, Phoenix, AZ 85012; or emailed to AllAzEIP2@azdes.
