Showing posts with label advocacy. Show all posts
Showing posts with label advocacy. Show all posts

Friday, November 20, 2009

Please, please e-mail or call your legislators!

A co-worker of mine attended a meeting at the State Capitol the other day regarding budget cuts to services for individuals with disabilities. She was informed that legislators are waiting to hear from citizens about the proposed budget cuts, and in fact are KEEPING COUNT of how many people oppose them. It is imperative that legislators hear from people who will be affected by these cuts. TELL them about your child, and how he or she benefits from early intervention. TELL them that losing these services would harm your child and family.
Here's the link to contact info for each representative. Please contact at least ONE.
http://www.azleg.gov/MemberRoster.asp

Tuesday, November 3, 2009

Update from Raising Special Kids

about CRS.

Raising Special Kids
ACTION ALERT

November 3, 2009

What's next?


Dear Friends and Families:

This week, 2,000 parents of children with disabilities and special health conditions are receiving letters from APIPA. These families are being informed that their eligibility for CRS services has been terminated. This is not like the previous letter, moving families into 100% self-pay status, this means their eligibility to use CRS services has ended.

As the budget crisis deepens, the ability of the state to provide for its most vulnerable children is being tested as never before.
We all have a stake in seeing that our elected representatives understand the critical nature of these services for children with disabilities and special health needs. Without access to health care services and the ability to manage serious and chronic medical conditions, more children suffer needlessly, become more severely affected by their disability, and have a less favorable prognosis. What is the legislature doing to see that the state meets its basic obligations to children for health, education, and essential services? And what program is on the next list of cuts?

Find your legislators and their contact info at http://www.azleg.gov/


Please refer to our website www.raisingspecialkids.org or contact us at 602-242-4366, Toll Free 1-800-237-3007 or info@raisingspecialkids.org

For additional advocacy tips and support visit http://www.pafcoalition.org/

Monday, June 22, 2009

You're Not Listening rally June 23rd

CALLING ALL CONCERNED

The “You’re Not Listening!” event takes place TUESDAY, June 23. This event will have a different feel/appeal than what has been done in the past.

There has been marching, rallying, chanting, singing, moments of silence, emailing, phone calling, meeting with your legislators, articles in the news, letters to the editor, interest stories on the news/tv and the list goes on… These efforts HAVE made a difference. A judgment was awarded resulting in 69 days without budget cuts and restoration of non-title 19 funded services – so far; restoration of Early Intervention Services and a renewed sense of urgency and attention to the disabled population. But we cannot stop there. We need assurances for our children well beyond the age of 3. Our State government is NOT LISTENING to our cries for justice for ALL disabled citizens.

Therefore think visual, symbolic, strong messages that convey images, feelings and thoughts, to other participants. Our focused target group is the Governor, Legislators, the press/media and passersby.

Ideas…Suggestions…

  • Earmuffs representing you’re not listening/hearing us
  • Trace two hands together and “cut” off one finger – representing a loss of 10%

**Place your name, address, phone number on the back for delivery to Governor/Legislators**

  • Group of 100 people, 90 in white shirts, 10 in black.
  • Candlelight Vigil – 100 candles, 10 not lit

We need large banners like bed sheets, bolts of cloth with statements representing what “You’re Not Listening” means to you and the individuals you serve. Use your body as a billboard – wearing white t-shirts with your message of “You’re Not Listening”. Or depict thoughts and feelings about being developmentally disabled – that it is a challenge in itself - having to justify that disability - having to justify necessary life supporting services - having to settle for anything less than whole is an injustice – merciless - acts of violence (another train of thought).

Timelines…..this is an estimate, details will be sent Monday 6/22/09

11:30a – Governors tower

12:00p – Press Release House Lawn

12:30p – House of Representatives

1pm – Senate

Prayer/Candlelight Vigil – 7pm-9pm

As Tom stated in his last email, “I am begging each of you to put aside any differences and work together to fight the extremely destructive appropriations that will hurt people with disabilities, their families and providers of service for years to come, if they are approved as currently recommended. We would love to see you next Tuesday and we hope you will support our efforts to get our Governor and Legislature to listen to our plea.”

Please forward this notice, as well as future notices, to anyone you think might be potentially interested.

Wednesday, May 6, 2009

Public Hearing on Friday

If you can't attend, please send an e-mail!


PUBLIC NOTICE

APPLICATION FOR FUNDS UNDER

PART C OF THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT

FEDERAL FISCAL YEAR 2009 (July 1, 2009-June 30, 2010)

The Department of Economic Security (DES), as the Lead Agency for Part C of the Individuals with Disabilities Education Act (IDEA), is seeking public comment on Arizona’s draft 2009 Application for Federal Funds. The Arizona Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will accept input on the application beginning April 3, 2009 until June 3, 2009. The application is for Arizona’s early intervention program, a statewide program for infants and toddlers, birth to three years of age, with disabilities and their families. The participating State agencies include: the Arizona Department of Economic Security (DES), Arizona State Schools for the Deaf and the Blind (ASDB), Arizona Department of Health Services (DHS), Arizona Health Care Cost Containment System (AHCCCS), and the Arizona Department of Education (ADE).

Persons submitting comments on specific items in the application should indicate support, opposition, suggested changes, additions, or deletions pertaining to the specific item. Input received by DES/AzEIP by4:00 p.m. on June 3, 2009 will be considered. The draft application will be available atwww.azdes.gov/ AzEIP. If you are unable to access the application electronically, please contact DES/AzEIP at (602) 532-9960; toll-free at (888) 439-5609, or by email at AllAzeip2@azdes. gov.

The Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will conduct public comment hearings on the draft 2009 Application for Federal Funds, at the following locations and dates:

5/8/09- Phoenix- 2:30-3:30pm

AZ DOT – HRDC

Grand Canyon Rooms 1&2

1130 N. 22nd Avenue

Phoenix, AZ 85009


5/26/09-Flagstaff 2pm-4pm

East Flagstaff Community Library Meeting Room

3000 N. Fourth Street, Suite 5

Flagstaff, AZ 86004




5/27/09- Phoenix 4pm-6pm

Yucca Library Meeting Room

5648 N. 15th Avenue

Phoenix, AZ 85015


5/28/09- Tucson 4pm-6pm

Himmel Park Branch Library Meeting Room

1035 N. Treat Avenue

Tucson, AZ 85716














Oral and written comments will be accepted at the public hearing. Written comments may also be mailed to DES/AzEIP, 3839 N. 3rd Street, Suite 304, Phoenix, AZ 85012; or emailed to AllAzEIP2@azdes.

Tuesday, April 21, 2009

Important Action Alert!!

IMPORTANT BUDGET UPDATE!!! YOUR ACTION IS NEEDED!!

IT APPEARS THAT THE SENATE APPROPRIATIONS COMMITTEE WILL HEAR BUDGET BILLS THIS THURSDAY, APRIL 23, 2009 AT 9:30AM IN SENATE HEARING ROOM 109.

A NUMBER OF STRIKER BILLS HAVE BEEN PUT ON THURSDAY'S SENATE APPROPRIATIONS COMMITTEE AGENDA. HOWEVER, AT THIS TIME, LANGUAGE FOR THE BUDGET BILLS IS NOT AVAILABLE AND IT IS NOT CLEAR IF THE BILLS WILL ADDRESS THE ADDITIONAL SHORTFALLS IN THE RECENTLY APPROVED FY2009 BUDGET OR THE SIGNIFICANT FY2010 BUDGET DEFICIT (ESTIMATED $3 -$3.4 BILLION).

THE TIME TO ACT IS NOW!!!

THERE IS STILL TIME TO INFLUENCE THE PROCESS!!

IF YOU DON'T ACT NOW- LEGISLATORS WILL ACT WITHOUT YOUR INPUT AND MAY INADVERTENTLY MAKE DECISIONS THAT MAY HURT YOU AND YOUR LOVED ONES!!!!

WHY THIS IS IMPORTANT:

  • As you know, services that people with disabilities and their families depend on sustained major cuts in the FY09 Budget solution and due to the state's continued economic crisis, there is an additional deficit that remains for FY2009 (estimated at $400-$500 million). Legislators will likely have to revisit the FY2009 Budget and may have to make additional cuts to critical state funded programs and services that Arizonans with disabilities and their families rely on.
  • Legislators are ALSO trying to resolve and even GREATER deficit in FY2010 (approximately 2 times the deficit in FY09 ($3 - 3.4 billion).
  • Although the federal stimulus monies may help the situation somewhat, the specifics are still somewhat unclear.
  • Because of this, Legislators are desperately looking at ways to save the state money.
  • That may include ADDITIONAL cuts to crucial services and programs that people with disabilities and their families depend on.
  • It is likely that the Budget Bills scheduled to be heard in the Senate Appropriations Committee this Thursday will move quickly through the process which means that there is very LITTLE time left to advocate for the preservation of critical health and human services that Arizonans with disabilities and their families depend on.

IF PROTECTING CRITICAL HEALTH AND HUMAN SERVICES FROM DRASTIC BUDGET CUTS IS IMPORTANT TO YOU, THEN YOU NEED TO:

  • Call and email the Senate Appropriations Committee Members before the Appropriations Committee hearing this Thursday, April 23, 2009 and encourage the Committee Members to advocate in the hearing for the preservation of critical services that people with disabilities and their families depend on for basic quality of life!!
  • AFTER you contact the Senate Appropriations Committee Members, call and email your legislators and as many of the members of the Senate and House Leadership as possible. Encourage them to also help safeguard crucial services that people with disabilities and their families rely on.
  • If you are working during the day and cannot make calls and send emails during regular business hours - then call and=2 0leave voicemail messages and send emails at whatever time you can. REMEMBER: Make the process work for you! Do anything and everything that you can.
  • If you have an account with 'ALIS' be sure to sign-on online(on the day of the Senate Appropriations Committee Hearing, Thursday, April 23, 2009 before 9:30am) and leave your comments regarding Arizona's Budget.
  • Get your friends, family members, neighbors, and acquaintances to do ALL of the above!!!

If you support this issue - What YOU Need to Say

* Briefly tell them your personal story. Explain how cuts would affect you and others.

Consider reminding them that:

* Thousands of Arizonans are Counting on them to address the budget deficit by identifying areas that do not cause irrevocable harm to Arizonans with disabilities and their families .

* That you'd like them to fight hard to preserve funding for critical services for people with disabilities

* Cutting health and human services is not eradicating luxury; it is eliminating life sustaining necessities.

* Addressing the budget deficit isn't just about numbers; it's also about assuring that Arizonans with disabilities are afforded the most basic human accommodation; shelter, food, health care, provision for mobility, education, employment, critical early intervention and rehabilitation services.

IN ADDITON TO YOUR LEGISLATORS, CONTACT AS MANY OF THE FOLLOWING PEOPLE AS YOU CAN:

Members of the Senate Leadership


President: Robert "Bob" Burns (R-9)
Phone Number: (602) 926-5993
Email Address: Rburns@azleg. gov

President Pro Tempore: Thayer Verschoor (R-22)
Phone Number: (602) 926-4136
Email Address: tverschoor@azleg. gov

Majority Leader: Chuck Gray (R-19)
Phone Number: (602) 926-5288
Email Address: cgray@azleg. gov

Majority Whip: Pamela Gorman (R-6)
Phone Number: (602) 926-5284
Email Address: pgorman@azleg. gov

Minority Leader: Jorge Luis Garcia (D-27)
Phone Number: (602) 926-4321
Email Address: jgarcia@azleg. gov

Asst. Minority Leader: Rebecca Rios (D-23)
Phone Number: (602) 926-5685
E mail Address: rrios@azleg. gov

Minority Whip: Linda Lopez (D-29)
Phone Number: (602) 926-4089
Email Address: llpoez@azleg. gov

Members of the House Leadership


Speaker of the House: Kirk Adams (R-19)
Phone Number: (602) 926-5495
Email Address: kadams@azleg. gov

Speaker Pro Tempore: Steven B. Yarbrough (R-21)
Phone Number: (602) 926-5863
Email Address: syarbrough@azleg. gov

Majority Leader: John McComish (R-20)
Phone Number: (602) 926-5898
Email Address: jmccomish@azleg. gov

Majority Whip: Andrew Tobin (R-1)
Phone Number: (602) 926-5172
Email Address: atobin@azleg. gov

Minority Leader: David Lujan (D-15)
Phone Number: (602) 926-5829
Email Address: dlujan@azleg. gov

Asst. Minority Leader: Kyrsten Sinema (D-15)
Phone Number: (602) 926-5058
Email Address: ksinema@azleg. gov

Minority Whip: Chad Campbell (D-14)
Phone Number: (602) 926-3026
Email Address: ccampbell@azleg. gov

Senate Appropriations Committee

Chairperson: Russell Pearce (R-18)
Phone Number: (602) 926-5760
Email Address: rpearce@azleg. gov

Vice-Chair: Al Melvin (R-26)
Phone Number: (602) 926-4326
Email Address: amelvin@azleg. gov

Member: Pamela Gorman (R-6)
Phone Number: (602) 926-5284
Email Address: pgorman@azleg. gov

Member: Ron Gould (R-3)
Phone Number: (602) 926-4138
Email Address: rgould@azleg. gov

Member: Sylvia Allen (R-5)
Phone Number: (602) 926-5219
Email Address: sallen@azleg. gov

Member: Paula Aboud (D-28)
Phone Number: (602) 926-5262
Email Address: paboud@azleg. gov

Member: Amanda Aguirre (D-24)
Phone Number: (602) 926-4139
Email Address: aaguirre@azleg. gov

Member: Rebecca Rios (D-23)
Phone Number: (602) 926-5685
Email Address: rrios@azleg. gov

Member: Albert Hale (D- 2)
Phone Number: (602) 926-4323
Email Address: ahale@azleg. gov

Member: Jack Harper (R-4)
Phone Number: (602) 926-4178
Email Address: jharper@azleg. gov

Member: Steve Pierce (R-1)
Phone Number: (602) 926-5584
Email Address: spierce@azleg. gov


House Appropriations Committee


Chairperson: John Kavanagh (R-8)
Phone Number: (602) 926-5170
Email Address: jkavanagh@azleg. gov

Vice-Chair: Andy Biggs (R-22)
Phone Number: (602) 926-4371
Email Address: abiggs@azleg. gov

Member: Steve Court (R-18)
Phone Number: (602) 926-4467
Email Address: scourt@azleg. gov

Memb er: Olivia Cajero Bedford (D-27)
Phone Number: (602) 926-5835
Email Address: ocajerobedford@ azleg.gov

Member: Cloves C. Campbell, Jr. (D-16)
Phone Number: (602) 926-3042
Email Address: clcampbell@azleg. gov

Member: Russell Jones (R-24)
Phone Number: (602) 926-3002
Email Address: rjones@azleg. gov

Member: Rich Crandall (R-19)
Phone Number: (602) 926-3020
Email Address: rcrandall@azleg. gov

Member: Matt Heinz (D-29)
Phone Number: (602) 926-3424
Email Address: mheinz@azleg. gov

Member: Nancy McLain (R-3)
Phone Number: (602) 926-5051
Email Address: nmclain@azleg. gov

Member: Rick Murphy (R-9)
Phone Number: (602) 926-3255
Email Address: rmurphy@azleg. gov

Member: Kyrsten Sinema (D-15)
Phone Number: (602) 926-5058
Email Address: ksinema@azleg. gov

Member: David Schapira (D-17)
Phone Number: (602) 926-3028
Email Address: dschapira@azleg. gov

Member: Vic Williams (R-26)
Phone Number: (602) 926-5839
Email Address: vwilliams@azleg. gov

Saturday, April 11, 2009

Public Notice for Comments

These are important issues, and these meetings are a good time for parents and families to comment on services and what is and isn't meeting their needs. The text below is a bit wordy, so I've tried to bold the important parts (meeting times/locations and contact info).

According to one parent, there are several proposals on the table that parents need to be aware of:
1. Families will be informed that their IFSP records will be kept for five years after their child leaves AzEIP.
2. AzEIP will institute a Family Cost Participation (FCP), this would require that families whose children receive services from AzEIP and DDD (but not ASDB) families making over 200% of the federal poverty level will pay 15% of the costs of their child's services (therapies, not service coordination, evalutions/assessme nts or IFSP development) and then it will increase by 5% to 100% of the costs.

The Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP), is seeking public comment between April 3, 2009 and June 3, 2009 on the attached proposed FFY 2009 Application for
Federal Funds under Part C of the Individuals with Disabilities Act, including proposed changes to Family Cost Participation, General Supervision, and Procedural Safeguards policies.

PUBLIC NOTICE:
APPLICATION FOR FUNDS UNDER PART C OF THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT
FEDERAL FISCAL YEAR 2009 (July 1, 2009-June 30, 2010)
The Department of Economic Security (DES), as the Lead Agency for Part C of the Individuals with Disabilities Education Act (IDEA), is seeking public comment on Arizona's draft 2009 Application for Federal Funds. The Arizona Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will accept input on the application beginning April 3, 2009 until June 3, 2009. The application is for Arizona's early intervention program, a statewide program for infants and toddlers, birth to three years of age, with disabilities and their families. The participating State agencies include: the Arizona Department of Economic Security (DES), Arizona State Schools for the Deaf and the Blind (ASDB), Arizona Department of Health Services (DHS), Arizona Health Care Cost Containment System (AHCCCS), and the Arizona Department of Education (ADE). Persons submitting comments on specific items in the application should indicate support, opposition, suggested changes, additions, or deletions pertaining to the specific item. Input received by DES/AzEIP by 4:00 p.m. on June 3, 2009 will be considered. The draft application will be available at www.azdes.gov/AzEIP. If you are unable to access the application electronically, please contact DES/AzEIP at (602) 532-9960; toll-free at (888) 439-5609, or by email at AllAzeip2@azdes. gov.

The Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will conduct public comment hearings on the draft 2009 Application for Federal Funds, at the following locations and dates:

Phoenix May 8, 2009
2:30-3:30 p.m. AZ DOT - HRDC
Grand Canyon Rooms 1&2
1130 N. 22nd Avenue
Phoenix, AZ 85009


Flagstaff
May 26, 2009
2:00-4:00 p.m. East Flagstaff Community Library Meeting Room
3000 N. Fourth Street, Suite 5
Flagstaff, AZ 86004


Phoenix
May 27, 2009
4:00-6:00 p.m. Yucca Library Meeting Room
5648 N. 15th Avenue
Phoenix, AZ 85015


Tucson
May 28, 2009
4:00-6:00 p.m. Himmel Park Branch Library Meeting Room
1035 N. Treat Avenue
Tucson, AZ 85716


Oral and written comments will be accepted at the public hearing.
Written comments may also be mailed to DES/AzEIP, 3839 N. 3rd Street,
Suite 304, Phoenix, AZ 85012
; or emailed to allazeip2@azdes. gov.

Thank you in advance for your careful consideration and comments.

Arizona Early Intervention Program
3839 N. Third Street, Suite 304
Phoenix, AZ 85012

602-532-9960, toll free 888-439-5609
fax 602-200-9820
WWW.AZDES.GOV/ AzEIP

Friday, April 10, 2009

White Envelope Campaign

I know this is late in coming, but I've had a crazy week.

NO MORE BUDGET CUTS!

CRITICAL SERVICES ARE BEING CUT FOR CHILDREN AND ADULTS WITH DEVELOPMENTAL DISABILITIES AND OTHER SPECIAL HEALTH CARE NEEDS. THE AZ COMMUNITY NEEDS TO TAKE A STRONG STAND –STRENGTH IN NUMBERS – TO LET OUR GOVERNOR AND LEGISLATORS KNOW…

THIS IS NOT OKAY!

On April 10th, 2009, we want to let them know in a BIG way that we are a united front. Here’s what YOU can do:


1) Get a white envelope (letter size works well)

2) On the back of the envelope, write the following message:

(You could also print & paste this message to the back of an envelope.)


This envelope represents one baby, child or adult with

disabilities who’s life will be critically impacted by budget

cuts. This envelope is empty because it represents what the lives

of people who are vulnerable will be like without the support they

need to live with dignity and respect. It also represents the

emptiness that our communities will experience without the

inclusion of people with disabilities. Sad…lonely…empty. Is anyone listening?

3) Send your empty envelope to The Honorable Jan Brewer, Governor of Arizona, 1700 West Washington, Phoenix, AZ 85007. Additionally, do another envelope for each of your District Representatives and your Senator. You can find your legislators online at www.azleg.gov .You can also find your District listed on your voter registration card.
4) Put a stamp on the empty, sealed envelope (with message on back) and

mail on April 10th

5) E-mail this message to every single person you know who cares.

It may seem that those who care about people with special needs are in the minority. It may seem like we have no voice. Let us show our elected officials that the voices of those who care for people with developmental disabilities and other health care needs are not silent and must be heard. An empty envelope will send the message that there is moral outrage over these budget cuts. It will be quiet, but clear.

IT IS IMPORTANT THAT YOU DO THIS. PEOPLE WITHOUT A VOICE ARE COUNTING ONYOU! IT IS A SMALL THING FOR EACH OF US TO DO THAT CAN HAVE A HUGE IMPACT!

“Never doubt that a small, group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” -Margaret Mead

Friday, March 20, 2009

Thursday's Rally

I've been keeping an eye out for someone in blogland who attended the Capitol building rally on Thursday, and I finally found someone here. It looks like there was a good turnout.
If you have run across any other links or news stories related to the most recent rally, please let me know!

Tuesday, March 17, 2009

Due Process Hearing Requests

This is some excellent info that I picked up on the AZEI Yahoo group about requesting a due process hearing. I am re-posting it with permission from the author, Maureen Casey.
Please note: this is not legal advice—if you would like legal advice you can visit the following websites to identify a lawyer: www.cadre.org, www.saarc.org, www.azbar.og
1. Parents want to file a complaint and request a due process hearing. (not a systems complaint which is more of an internal investigation by the agency. They want an impartial hearing officer appointed) 34 CFR 303.429 and 34 CFR 303.420 Have parents state that a hearing officer should be appointed and that the matter should be heard and decided within 30 days as required by statute. State that the child must continue to receive the appropriate early intervention services being provided under the last agreed upon individual family service plan as noted in AZEIP's own procedures during the pendancy of the due process proceeding.
2. The complaint should state that the child is a child with a disability and gi ve the child's age and services listed on service plan. A brief individualized factual summary would be appropriate here.
The complaint should include a written statement that the agency (DES/AZEIP) has violated IDEA Part C by failing to provide appropriate services for a child with a disability ages birth through 2 and list the services that the agency has proposed to eliminate or reduce.
If appropriate the complaint should state that the agency failed to provide the parents an opportunity to participate in a meeting where reduction or elimination of services was discussed and failed to provide the parents with prior written notice (PWN) or procedural safeguards. PWN is required anytime the agency proposes or refuses to initiate or change the ident ification, evaluation or placement of a child or the provision of services to the child or the child's family. Cite 34 CFR 303.403(a) PWN must include a statement by the agency of what action they propose to take or are refusing to take and the reasons for their action or refusal. This notice must be provided after a decision but BEFORE the action is taken to allow parents time to exercise their procedural safeguards. I might also state that the agency failed to establish a policy concerning payment for services and/or applied any new policy illegally and retroactively. (this applies to parents who were told they would now be charged increased fees for their child's services) Again, fill in with specific details such as the dates of notice, services proposed to be eliminated and state that the agency's decision is NOT based on the individual needs of the child but is arbitrary and based soley on budgetary concerns. Reference any evaluations or prior documents which state the services that the child needs to make progress in all areas of development. State that the agencies decision to eliminate or reduce services to the child is a direct violation of IDEA Part C.
3. Remedies sought should be continuation of services during the pendancy of the due process complaint (which should be 30 days); compensatory services or funding for any services misses or not provided and immediate approval for reinstatement of the services which were cut.
4. I would advise parents to write a letter requesting that they be allowed to review their child's record pursuant to FERPA. The agency must make the records available for inspection within 2 weeks of the request. Parents can't effectively pursue a due process hearing without a complete copy of the child's record.
Send the written request for due process and complaint to:
Molly Bright Part C Coordinator and Executive Director
Arizona Early Intervention Program
Department of Economic Security
3839 N. 3rd Street Suite 304
Phoenix AZ 85012

Monday, March 16, 2009

Important info for Parents

A speech-language pathologist who has been blogging about the DDD/DES cuts has a very informative post up about due process info, and sharing your Early Intervention story. Check it out here!

I second her recommendation to join the AZEarlyInterventionParents/Caregivers group on yahoo. There are several advocates and members of ICC who post, as well as parents and providers. This group has been extremely helpful to me in keeping up to date with everything going on in EI right now. You can read messages from their homepage, but in order to post to the group you have to sign up with a yahoo ID.

Due Process Letters

We are hearing that as of a few days ago, only 100 or so due process letters had been filed, out of over 2,000 families who would be affected by DES funding cuts. We NEED more families to write letters. This is the key phrase to use:
I am requesting a due process hearing due to violations of IDEA-related procedural safeguards.
This phrase will trigger pendancy (stay put--continuing services), it will trigger a hearing about the service reductions to your individual child and it will trigger a system complaint regarding this happening not only to your child but to other children in the system.
Send the written request for due process and complaint to:
Molly Bright Part C Coordinator and Executive Director
Arizona Early Intervention Program
Department of Economic Security
3839 N. 3rd Street Suite 304
Phoenix AZ 85012

Cuts to CRS Funding

From an action alert by Raising Special Kids

Due to recent budget cuts at the Department of Health Services, 1,200 children with serious health conditions will be removed from coverage in Children's Rehabilitative Services or CRS. The elimination affects children who are not eligible for Medicaid or ALTCS. Families will become responsible for 100% of the costs of care, even though most have no other health insurance.
CRS provides health coverage to "chronically ill or physically disabled children" under twenty-one years of age, with a primary diagnosis of a severe physical condition that may require ongoing, medical or surgical intervention.
Children are eligible for the CRS program based on specific medical diagnoses, such as Cerebral Palsy, Cystic Fibrosis, Sickle Cell Anemia, Metabolic Disorders, Spina Bifida, Cleft Lip/Cleft Palate, and Congenital Heart Anomalies
Without CRS coverage, many of these children will experience life-threatening conditions from not receiving medications that keep them out of the ER and hospital. Children with serious illnesses will not receive needed surgeries which may lead to increasing disability and in some cases, preventable deaths.
State budget cuts will affect the lives, health, and safety of children in many ways and throughout all systems of care.
Governor Brewer has 18 days left to request $185 million in federal stimulus funds available for Arizona. We can correct this situation by using stimulus funding to restore coverage for CRS:

Please ask Gov. Brewer to request Arizona's stimulus funds before it is too late.

Mailing address: EMAIL: http://azgovernor. gov/Contact. asp

The Honorable Jan Brewer
Governor of Arizona
1700 West Washington
Phoenix, Arizona 85007


Telephone (602) 542-4331 Toll Free 1-(800) 253-0883


These cuts continue to cut deeper and deeper into groups that can ill afford it. Please, please call, e-mail, or write to let Gov. Brewer know that these cuts are hurting families and children.
If this change will present financial hardships for your family you should contact your service coordinator/ support coordinator and ask them to reconvene your IFSP team to assist you in identifying another service provider who will not present such a financial hardship.

Wednesday, March 11, 2009

Stepping It Up

"PHOENIX – (March 11, 2009) Today, Maricopa County Superior Court Judge Joseph Hellman issued a preliminary injunction against the Department of Economic Security (DES) preventing the agency from implementing $16.8 million in general fund reductions, including the suspension of non-residential, state-funded services to more than 4,000 children and adults with developmental disabilities and various rate reductions to providers of services to those individuals.
The following is the Department’s statement regarding today’s ruling:
The Department will, of course, abide by the court's ruling, however, we intend to appeal the decision and ask the court to stay the injunction.
The Department’s planned $16.8 million reduction was a result of the lump sum reduction and fund transfers that were part of the special session, as well as unfunded, caseload-driven shortfalls in various programs. The total reduction to DES in the 2009 fiscal year was approximately $153 million.
Information about the budget reductions and impact to children, adults and families is available on the Department’s Web site, www.azdes.gov ." (emphasis mine)

While the injunction is a major victory because it will keep services going for the time being, families and providers are NOT out of the woods yet. As the press release states, the Department intends to ask for a stay so that they can appeal the court's decision.
Because of this, now is not the time to let our guards down. Its the time to keep making noise. Contact those making the decisions. Keep talking about how important these services are, and how discontinuing services hurts kids and families, and violates federal law. Here some specific next steps:

1. Everyone needs to call OSEP 202-245-7549 This is Patty Guard's number, she is the acting director for OSEP (the office of special education programs in the department of education). Tell her you are from Arizona, your child has an IFSP under Part C and your services have been ____________ . Tell her how your procedural safeguards have not been enforced ____________ _________ _____ and that you expect OSEP to assist Arizona in understanding the assurances it made when it took the $9.9 million in federal dollars to administrate this program.

2. Flood the Governor's office with calls, tell her you cannot believe that providing essential supports and services to children and adults with disabilities was not included in the latest round of budget negotions for FY 2009. Here is the contact info for her office.

3. Call your Congressmember and tell them to tell OSEP to stop watching what' s happening in Arizona and get INVOLVED. Tell them to tell Arizona that they cannot violate children's procedural safeguards, that eliminating services to children who have legally binding IFSPs is illegal and OSEP must tell Arizona to enforce your child's IFSP. Here are the contact pages for John Kyl, John McCain, the House of Representatives,

4. Again call your local legislators and tell them they must restore these services ASAP. Here is contact info for the AZ House of Representatives, the AZ Senate, and the AZ State Legislature.

(Remember your child's IFSP is to be individualized and based on your family's priorities, concerns and resources and that all decisions to changes services must be made by the TEAM, which includes you as your child's parents. You are to be provided Prior Written Notice, before any proposed change and you have the right to dispute resolution if you disagree with any proposed change and you have the right to pendancy (your previously agreed upon services continue during the dispute resolution process).
Send your letters to:
DES/AzEIP - disputes
3839 N 3rd St, Suite 304
Phoenix, AZ 85016

DDD Compliance and Review Unit
1789 W Jefferson
Phoenix, AZ 85007

Peri Jude Radecic - AzEIP disputes
Arizona Center for Disability Law
5025 E Washington St, Suite 202
Phoenix, AZ 85034
*Credit for this list goes to Maureen Casey of the EIFA

Feel free to repost any of the information here. I'm blogging about this to get the word out about how important EI is and what we can do to make sure these programs stay around for those who need them.
PS- I am still adding links to my blogroll. If you will be affected by these cuts, or if you have blogged about this issue, leave a comment anywhere and I'll add your link to the list in my sidebar.

Friday, March 6, 2009

How to file a complaint

Use the sample letter below as a format. Letters MUST be in writing and must include the legalities of IDEA Part C

Here is the page that describes the process of filing a complaint/appeal regarding your child's services: https://egov.azdes.gov/cmsinternet/main.aspx?menu=98&id=2366

Below the addresses to which you should send your complaint/appeals letters is the portion of the above-linked page that lays out the steps for filing a complaint with DES/AzEIP:

Send complaint/appeal letters to:
Arizona Center for Disability Law
5025 E Washington St, ste 202
Phoenix, AZ


AzEIP - Dispute
3839 N 3rd St
Suite 304
Phoenix, Az

KTaylor@azdes. gov

DDD - Disputes
1789 W Jefferson St., 4th floor
Phoenix, Az 85007


System Complaint

If you believe there has been any violation of the requirements and regulations of IDEA, Part C, including a violation of your child's or family's rights, you may file a complaint with DES/AzEIP.

Steps in initiating a complaint:

  1. You must send a written, signed complaint to:
    Executive Director, DES/AzEIP
    3839 N. 3rd Street, Suite 304
    Phoenix, Arizona 85012
  2. The written, signed complaint must include a statement that there has been a violation of a requirement or regulation of IDEA, Part C, and the facts of the situation.
  3. The Executive Director or a designee will review the complaint and decide if it is a valid complaint. A complaint will be judged valid if the alleged violation occurred not more than one year before the date the complaint was received, unless:
    1. the alleged violation continues for the child or other children; or
    2. the person making the complaint is requesting reimbursement or corrective action for a violation that occurred not more than three years before the complaint was received.
  4. If the complaint is judged to be valid, then the Executive Director or a designee will review all the relevant information and will:
    1. conduct an on-site investigation, if necessary; and
    2. give the person making the complaint the opportunity to submit additional information, either orally or in writing.

The Executive Director or a designee will make an independent decision as to whether there has been a violation of IDEA, Part C and send a written copy of the decision to all parties within 60 days of receiving the complaint.

From here

http://takeactioninaz.blogspot.com/2009/03/send-appeal-letter-to-executive.html

For those appealing the DES/DDD letters

I realized that the previous version of this was cut off, so I'm fixing and reposting. Please, please write an appeal letter.

From the AZ Autism Coalition www.azautism.org


IDEA Part C Procedural Safeguards

If your child is between the ages of 0-3 and has been affected by these cuts, you have Federal safeguard rights that are meant to protect your child. Early intervention is partially funded by both State and Federal dollars, thus you must take action and appeal your child’s termination of services. Follow the appeals process (Administrative Review) carefully that is specifically detailed in the DES letter — you have 35 days from the date of the letter to appeal.

Here is a sample letter:

To Whom It May Concern:

My child is _____ years old and has a diagnosis of ___________. He/she has been receiving one hour per week of occupational therapy and speech therapy since __________, along with two hours per week with a developmental specialist. I received a letter from DES dated March 3, 2009, informing me that my child would no longer be receiving any therapies after March 13, 2009, due to the State’s economic hardships.

I respectfully request an Administrative Review and appeal this decision to remove services from my child. My child is entitled to early intervention services based on the Individuals with Disabilities Education Act (IDEA). According to Federal IDEA policy, services can only be stopped if the parents choose to withdraw their consent to participate or the child no longer needs services. Neither of which is the case. Also according to IDEA, services must stay in place while dispute resolution takes place.

Removing services from my child in this manner is a direct violation of IDEA, and I fully intend to dispute this removal of early intervention services.

Sincerely,


Send the letters to:

Division of Developmental Disabilities
Compliance and Review Unit
1789 E. Jefferson St., Fourth Floor
Phoenix, AZ 85007
or fax to:
(602) 364-2850

Arizona Center for Disability Law
5025 E Washington St, ste 202
Phoenix, AZ


AzEIP - Dispute
3839 N 3rd St
Suite 304
Phoenix, Az

KTaylor@azdes. gov

Thursday, February 26, 2009

Should I Bother?

That's been my question this week, every time I sit down to do something work-related. Do I bother putting together a few intake packets? What about the family I'm trying to start that hasn't been returning my phone calls? We are literally in a place where I could get a call tomorrow that it all goes kablooey as of Monday. Thankfully, that doesn't seem too likely since families haven't been getting termination letters. They ARE being told that authorizations won't be renewed, which means families won't be getting any new services, and many won't have services for much longer (most authorizations come up for renewal every 6 months). What's looking most likely right now, at least from my point of view, is that authorizations just won't be renewed, so kids will slowly drop off of the caseloads (mostly earlier than they should).
These are some pictures from the rally at the capitol building today. I don't know this woman, but I had to get a picture of her sign. I'd guess there were 400-500 people there- not a bad turnout for such short notice. And reasonably impressive when you squeeze them all into a fairly small outdoor area. :) There were also 2 news vans and at least one radio commentator that I saw walking around. I heard we were on both the 12 o'clock, and the evening news today, which is good. The more people see this and the less they are able to sneak it under the radar, the better. I did some searching and found a link to the video, but I'm having trouble embedding it, so here's the link.
I saw lots of families with young kids, and lots of adults receiving services. We tried to get in to talk to some of the senators and representatives, but were generally told that they were all in meetings, so we wound up leaving papers with secretaries and assistants. I saw a few important-looking people walking around appearing miffed that we were interrupting their day. Near the end of the day I ran into a speech therapist I know, and she said she'd been told that at least one senator was refusing to see people or take phone calls.

Here's our whole crew from Mosaic. I'm really happy that people from all of the different departments turned out, including the executive director and the HR lady. Granted, these cuts will affect everyone across the board, although differently. Really, though, the only person we left in the office was the receptionist.

Partway through the afternoon we went into the main area, thinking that the meetings and speeches were going to be here. We were wrong, but it was good for everyone to know we were there. :) One of the senators recognized all of the people from the disability community, so we all hooted and hollered a bit.
Once we realized we were in the wrong place, we hustled into the hearing rooms, where we got to listen in via closed circuit video. The hearings that were scheduled to start at 2pm actually started closer to 2:45. First they grilled someone about the cuts to higher education funding, then it was DES' turn. Some of what was said went over my head, but a fair amount of it made me want to scream. They basically said the cuts were going to hurt children, deny federally-mandated services, decimate the small businesses and nonprofits that provide services, and have more kids needing help when they are school-aged. And yet, they claim they have no other option for making up the budget shortfall.
So really, we did what we could. Letters and e-mails are still being sent, and we showed up and made ourselves heard. Oh, and I have a sunburn.