Saturday, May 23, 2009

Free Anat Baniel clinic

Anat Baniel Method for Children with Special Needs
Come learn about the Anat Baniel Method on June 7th from 10am-4pm at

Millennium Martial Arts School

91st Avenue & Peoria Avenue

(Next to Peter Piper Pizza)

9976 N. 91st Ave, B-110

Peoria, AZ 85345

What is the Anat Baniel Method?

The Anat Baniel Method expands on the work of Dr. Moshe Feldenkrais. It is a non-medical, learning based approach that uses gentle touch and movement to enable the child with special needs or a learning disability to improve physically, mentally and emotionally. It asks children to move only in ways which are within their true capabilities, creating a feeling of safety, encouraging a willingness to expand into new abilities. Practitioners certified in this method provide learning experiences that help children develop beyond their limitations. Infants’ and children’s progress often surpass medical expectations.

To reserve your free lesson call:

Michelle M. Turner 602.909.2565

Reserve a space for your child to receive a free introductory Anat Baniel Method lesson. Find out what a difference this new work can make in a special needs child’s life.

You can find out more about the Anat Baniel Method here. I will say that from what I've seen of this method, this is a great opportunity.

Right of the Month- May

To be informed about the types of records and information which are kept on your child and family, and the steps you can take to review and request changes to those records.

The agency I work for, and most other agencies that I know of, keep a file for each child/family in service. Our files include things like current IFSP's, evaluations, therapy reports, things signed at intake, and logs from each visit. Since the files are about your child, as the parent you have the right to ask to see the file. We prefer to make an appointment so that someone can sit down and go through the file with you, but there isn't anything in the file that you wouldn't be allowed to see. I believe the procedures with the DDD might be a bit different and a bit more formalized, but I searched briefly on their site and didn't find any info. If you are requesting a copy of your child's DDD file for some reason, calling your support coordinator would be a good first step.

Wednesday, May 13, 2009

Down Syndrome conference at Phoenix Children's

Phoenix Children's Hospital Presents:
Down syndrome: Recent Advances in Medical Treatment

Saturday, May 30, 8:00am-12:00pm
Panel of physicians specializing in Down syndrome including our own Medical Director, Dr Jason Turner
Down syndrome: Recent Advances in Medical Treatment

Audience – families and caretakers of children with Down syndrome
Saturday, May 30th
Cost – Free
Location –Cohen Conference Room
7:30 – 8:00 Registration
8:00 – 8:05 Welcome & introductions Lynda Christel
8:05 – 8:25 A parent's perspective Dr. Jason Turner
8:25 - 8:45 Primary Care Teens Dr Tressia Shaw
8:45 - 9:15 Developmental Pediatrics Dr Elaine Ellis
9:15 – 9:45 GI, Feeding Dr. Dana Ursea
9:45 – 10:15 Endocrinology Dr. Don Wilson
10:15 – 10:30 Panel Q & A PCH
10:30 – 10:45 Break
10:45 – 11:15 Orthopedics, Special Olympics Dr. Lee Segal
11:15 – 11:45 Cardiac Dr. Jeff Pearl
11:45 – 12:15 Pediatric Radiology Dr.Towbin
12:15 Panel Q & A PCH

Free parking
Register online at phoenixchildrens /events/down_ syndrome_ event/details. tcl
Contact Karen Pennington, Physician Relations at 602-546-3300 kpennington@ phoenixchildrens .com

Saturday, May 9, 2009

ACDL Hearing Update

"Zoe M. v. Blessing: Update - May 20 Stay Put Hearing Set" on Arizona Center for Disability Law
The U.S. District Court has set oral argument for ACDL's Stay Put Motion on Wednesday, May 20 at 11:15 am in Courtroom 6B, 405 West Congress Street in Tucson. ACDL filed a class action lawsuit against the Arizona Department of Economic Security to prevent the state from carrying out millions of dollars in budget cuts which violate federal and state law and greatly reduce or eliminate early intervention programs..."

http://acdlaw. forum/topic/ show?id=2968555% 3ATopic%3A1101

Wednesday, May 6, 2009

Public Hearing on Friday

If you can't attend, please send an e-mail!




FEDERAL FISCAL YEAR 2009 (July 1, 2009-June 30, 2010)

The Department of Economic Security (DES), as the Lead Agency for Part C of the Individuals with Disabilities Education Act (IDEA), is seeking public comment on Arizona’s draft 2009 Application for Federal Funds. The Arizona Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will accept input on the application beginning April 3, 2009 until June 3, 2009. The application is for Arizona’s early intervention program, a statewide program for infants and toddlers, birth to three years of age, with disabilities and their families. The participating State agencies include: the Arizona Department of Economic Security (DES), Arizona State Schools for the Deaf and the Blind (ASDB), Arizona Department of Health Services (DHS), Arizona Health Care Cost Containment System (AHCCCS), and the Arizona Department of Education (ADE).

Persons submitting comments on specific items in the application should indicate support, opposition, suggested changes, additions, or deletions pertaining to the specific item. Input received by DES/AzEIP by4:00 p.m. on June 3, 2009 will be considered. The draft application will be available AzEIP. If you are unable to access the application electronically, please contact DES/AzEIP at (602) 532-9960; toll-free at (888) 439-5609, or by email at AllAzeip2@azdes. gov.

The Department of Economic Security, Arizona Early Intervention Program (DES/AzEIP) will conduct public comment hearings on the draft 2009 Application for Federal Funds, at the following locations and dates:

5/8/09- Phoenix- 2:30-3:30pm


Grand Canyon Rooms 1&2

1130 N. 22nd Avenue

Phoenix, AZ 85009

5/26/09-Flagstaff 2pm-4pm

East Flagstaff Community Library Meeting Room

3000 N. Fourth Street, Suite 5

Flagstaff, AZ 86004

5/27/09- Phoenix 4pm-6pm

Yucca Library Meeting Room

5648 N. 15th Avenue

Phoenix, AZ 85015

5/28/09- Tucson 4pm-6pm

Himmel Park Branch Library Meeting Room

1035 N. Treat Avenue

Tucson, AZ 85716

Oral and written comments will be accepted at the public hearing. Written comments may also be mailed to DES/AzEIP, 3839 N. 3rd Street, Suite 304, Phoenix, AZ 85012; or emailed to AllAzEIP2@azdes.

Saturday, May 2, 2009

Sit tight...

and wait. That's the advice that is being given to families in service right now. The DES is aware of the court's decision, and is considering what it will do. Hopefully we'll hear something within the next week or so.
Until then, (and legally after that also) IFSP's are still in effect, and are still legally binding. That means that services should continue. Keep contacting legislators, DDD officials, and anyone else who doesn't realize these services are essential for helping kiddos reach their potential.
If a provider or support coordinator tells you that your services are being discontinued, first of all ask for it in writing. Second, call AzEIP 602-532-9960 or DDD 602-364-1379 or statewide 866-229-5553 and report it. I would also be interested in knowing if this is happening.
It has also been suggested that parents may want to call and restart the request for a due process hearing. The phone # is 602-532-9960. If you get voice mail, make sure to leave your name and phone # (# two times so they will be sure to get it correct and be able to contact you).
I have a PDF of the court's actual ruling, but I don't think I can post PDF's here, and I don't have an actual link. If you are interested in reading it, let me know and I can e-mail it to you.

Friday, May 1, 2009

Court Injunction Overturned

I don't know what this means, but I agree with everyone else that it sounds like BAD news. I don't know why it was decided in a state court when the laws being broken are federal ones. I'm back in high alert mode, and will be posting any information that I can get confirmed.

By Howard Fischer
Capitol Media Services
Tucson, Arizona | Published: 05.01.2009
Arizona is free to cut services to an estimated 30,000 residents with developmental disabilities, the state Court of Appeals ruled Thursday.
In a unanimous decision, the judges found that nothing in state law bars the Department of Economic Security from reducing services, overturning a trial-court ruling blocking cuts made in response to a legislative order to trim spending. The three-judge panel rejected arguments that those who have been getting help from the state are legally entitled to the services that have been specifically recommended for them. The judges also concluded there was nothing illegal about the state reducing what it pays to organizations that provide services to those with disabilities — funding cuts challengers said would affect those services.
Thursday's ruling comes less than two months after Judge Joseph Heilman of Maricopa County Superior Court blocked the DES from cutting services. Heilman said he had reached the "inescapable conclusion" that the haste with which DES acted in cutting its spending "has served to create nothing less than mass confusion, anxiety and uncertainty" among those who receive benefits from organizations paid to provide services. Heilman also said the DES acted to reduce services even though lawmakers did not relieve the agency of its legal responsibilities to provide care for those with mental-health problems.
Jennifer Nye, an attorney for the Arizona Center for Disability Law, said she was disappointed in the ruling. "We know that thousands of adults and children with disability are going to be harmed by these cuts in services and rates," she said. Nye also called it "very shortsighted on the part of the state to balance its budget on the backs of its most vulnerable population."
Lawmakers made $580 million in spending cuts in late January as part of a plan to deal with a $1.6 billion budget deficit. The DES share of that was close to $100 million. But the agency said its total cuts really amounted to more than $150 million, with cash taken from special accounts and the refusal of lawmakers to provide additional needed funds.
The DES, in turn, cut payments to service providers by 10 percent. It also eliminated services for people who are moderately developmentally disabled who, with support, can work in the private sector. And it dropped funding for early-intervention services for 2,000 children, from birth through age 3, who are at risk for developmental disability.
The appellate judges said lawmakers did nothing wrong in making a lump-sum cut to the DES budget and letting the agency decide what services to trim. They said legislators were faced with "a sobering assessment of plummeting revenues."